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Primary Submission Category: Methodological approaches to studying public health
Data as a Public Good: Trust, Transparency, and Technology in Population Health
Authors: Marjory Givens, Hannah Olson-Williams, Keith Gennuso, Christine Muganda, Bethany Rogerson, Michael Stevenson,
Presenting Author: Marjory Givens*
Public health data platforms are vital tools for community changemakers seeking to improve population health. Yet making population-level data accessible and analytically sound while also critically challenging social, structural, and scientific norms requires navigating persistent ‘data democracy’ tensions around what and how information is collected, analyzed and shared publicly. These challenges have intensified in a polarized political climate and amid federal and philanthropic disinvestment in data infrastructure. At the same time, emerging AI tools expand possibilities for insights and new data sources, while also introducing risks of opacity, misuse, and compounding biases of the corpora.
County Health Rankings & Roadmaps (CHR&R), a national program committed to democratizing data for local decision-making, confronts these complexities regularly. For nearly two decades, CHR&R has worked to make data actionable for a range of county types, including rural areas and among marginalized groups where small numbers can mean unstable or unreliable estimates, or risks to anonymity with data disaggregation. CHR&R seeks a balanced approach in democratizing data through methodological transparency and employing suppression to protect privacy and avoid misinterpretation. Audiences vary widely in data fluency, thus, CHR&R invests in methods of communication that include plain-language documentation, technical assistance to support accurate interpretation, and data sharing to support usability.
CHR&R will share approaches for navigating tensions, including audience engagement to inform decisions about democratizing data, communicating uncertainty in ways that build trust, and evaluating the responsible use of emerging technologies. This presentation invites discussion on how maintaining data as a public good is both a technical task and an ethical commitment to equity, transparency, and responsible stewardship in service of healthier communities.