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Primary Submission Category: Health equity

Creating an endometrial cancer educational toolkit for the community by the community

Authors:  Minerva Orellana, Patrice Williams, Julianna Alson, Adrienne Moore, Margie Wilson, Ziiomi Law, Zoe Julian, Kemi Doll,

Presenting Author: Minerva Orellana*

Endometrial cancer (EC) has a high mortality disparity, with Black women dying at twice the rate of white women. This is driven, in part, by a higher likelihood of advanced stage diagnosis among Black patients. Recent evidence supports a change to clinical guidelines to prioritize biopsy – rather than ultrasound – as a more effective test to increase early detection of EC among at-risk Black individuals presenting with the cardinal symptom of EC – postmenopausal or abnormal bleeding. To ensure awareness and equitable healthcare utilization in this emerging context, we sought to develop an educational toolkit to support Black patients with uteruses to make an informed decision about their EC diagnosis.

Our community-engaged project aims to develop an educational toolkit accessible to any Black patients with a uterus. The toolkit incorporated results from our community-engaged mixed-method project for information dissemination. At every level of the toolkit creation and dissemination, we engaged our community consultants, EC survivors and Black advocates for gender diverse identities. We posted toolkit content on social media platforms with metrics tracking to determine reach and engagement.

We have two content material versions for the inclusiveness of everyone with a uterus. Based on focus group results, we developed a toolkit that took a “risk-based” approach by sharing information to empower recipients to assess their best course of care. The toolkit includes infographics and reels. The information ranges from endometrial cancer background and risk, information about gynecologic procedures, to how to engage with a provider. Early metric analysis shows more engagement on our general gynecologic content than on our endometrial cancer-specific content.

Engaging with community partners and stakeholders from an early stage has provided us with the opportunity to disseminate relevant and necessary information to this community at high risk for endometrial cancer.